Guest Voice: Moving, literally, in the right direction for sickle cell care. Richard Bayliss is 44 years old and has sickle cell disease with hemoglobin SS disease.

6 天之前 · New treatments and therapies are being developed every day for people with sickle cell disease. I take hydroxycarbamide daily. The medicine was initially designed for cancer …

Sickle cell anemia is an inherited blood disorder. It is caused by a mutation in the gene encoding for hemoglobin, the protein in red blood cells that binds to oxygen so it can be transported …

2022年1月4日 · Sickle cell disease (SCD) is an inherited disorder caused by a mutation in the gene encoding a subunit of hemoglobin, the protein that carries oxygen in red blood cells. …

2025年1月8日 · Complications vary from person to person. While numerous potential complications are associated with sickle cell disease, it’s important to note that not every …

2024年12月12日 · Vertex Pharmaceuticals, which developed Casgevy alongside CRISPR Therapeutics, shared the findings at the 66 th American Society of Hematology (ASH) Annual …

2024年12月19日 · The treatment also increased total hemoglobin levels and was well tolerated, according to a company press release from Editas Medicine, the developer of the gene-editing …

Sickle Cell Disease News is a digital platform intended to provide the sickle cell disease (SCD) community with the most recent news and information on SCD, as well as first-hand …

2024年11月18日 · The extensive research, funding, and other resources required for gene therapy to be approved and for a patient to complete treatment can’t be understated.It also …

2024年9月16日 · These activities help to build a sense of community among people with sickle cell and to educate the broader public. The stories that are shared help to put a human face on …