This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...

What Is Gene Therapy? The cystic fibrosis transmembrane conductance regulator (CFTR) gene contains the instructions for making the CFTR protein. When there is a mutation — or alteration — in the ...

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...

The Impact of the CF Community This month is a celebration of you — the individuals, families, and supporters who make up the CF community. You can join us by sharing your accomplishments, milestones, ...

Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...

*Respondents were able to select multiple answers to this question. The survey results reaffirm the importance of the Foundation’s mission to find a cure for CF and to provide all people with CF the ...

You're probably wondering why we didn't go to any shelters. Well, to answer that question, we tried to, and they would take my partner in a heartbeat, no questions asked. However, with my cystic ...

I was 8 years old, standing in our family dining room with my dad, setting the table for my baby sister Jill's 2nd birthday celebration. Always older than my years, I remember so clearly saying to my ...

Hearing the words cystic fibrosis can be a lot for first-time parents — or any parent. In the fall of 2019, my husband David and I showed up for an OB-GYN appointment. I was about 11 weeks pregnant ...

The Cystic Fibrosis Foundation strongly condemns the Senate’s reconciliation proposal, which will destabilize Medicaid and the Affordable Care Act (ACA) marketplace. If this bill becomes law, there ...

About Cystic Fibrosis and the Cystic Fibrosis Foundation Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and ...