资讯

Columnist Sherry Toh explains how her doctors demonstrated the correct way to provide a supportive environment for LGBTQ+ ...
Tyler, who has SMA, shares how smart home technology helps support his daily routines, independence, and overall quality of ...
A trip to England with her friend of 30-plus years prompts columnist Connie Chandler to give thanks for kind friends who ...
Learn what you need to do to have a fun, safe, and stress-free day at an amusement park when you have spinal muscular atrophy.
Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...
Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.
Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...
Lexi and Eric, who both have SMA, grew up together and fell in love — building a life full of humor, heart and figuring it out as they go.
Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from ...
Jeffrey Selby is a proud husband to his wife Angie whom he married in 2017. Together, they’ve built a life full of love and laughter. Jeff is a licensed realtor with spinal muscular atrophy (SMA) type ...
Lila is a Science Writer at BioNews. She completed her PhD in neuroscience at the University of Washington, where she studied how the natural flexibility of the human brain can be used to promote ...