资讯

Columnist Sherry Toh explains how her doctors demonstrated the correct way to provide a supportive environment for LGBTQ+ ...
Tyler, who has SMA, shares how smart home technology helps support his daily routines, independence, and overall quality of ...
A trip to England with her friend of 30-plus years prompts columnist Connie Chandler to give thanks for kind friends who ...
Learn what you need to do to have a fun, safe, and stress-free day at an amusement park when you have spinal muscular atrophy.
Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...
Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...
Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.
Lexi and Eric, who both have SMA, grew up together and fell in love — building a life full of humor, heart and figuring it out as they go.
Meeting your new medical team is never easy, especially when you have a complex and rare disease like SMA, columnist Alyssa ...
Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from ...
Spinal muscular atrophy, or SMA, is a genetic disorder that is divided into five main types. Historically, people were categorized based on the age at which symptoms first appear, but now, in the ...