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sicklecellanemianews
3 小时
SCD gene-editing therapy Casgevy now being offered at CHLA
With the addition of Casgevy, Children’s Hospital Los Angeles now offers two gene therapies for sickle cell, the first being Lyfgenia.
sicklecellanemianews
2 天
First patient enrolled in Phase 1 trial testing fostamatinib for SCD
The first patient has been enrolled in a Phase 1 trial by the NHLBI that's evaluating fostamatinib as a treatment for sickle ...
sicklecellanemianews
6 天
Guest Voice: Moving, literally, in the right direction for sickle cell care
After moving from Sierra Leone to London, guest columnist Richard Bayliss received a proper diagnosis and care plan for his ...
sicklecellanemianews
6 天
Richard Bayliss,
Richard Bayliss is 44 years old and has sickle cell disease with hemoglobin SS disease. He’s in the final year of a master’s ...
sicklecellanemianews
6 天
How to be an ally to those of us with sickle cell disease
Columnist Mary Shaniqua explains how to be an ally to the sickle cell community, and why that kind of support is essential ...
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