Trailer: Pearl Jam frontman Eddie Vedder's new documentary, 'Matter of Time, ' raises awareness and funds for epidermolysis ...

A couple whose son has a rare genetic skin condition say it is hard to process that a cuddle could "tear his skin". Twenty ...

As influencer Hannah Campbell mourns the death of her 10-month-old daughter, Elliana Rose, she is also doing her part to ...

Twenty month old Albi was born with a severe form of recessive dystrophic epidermolysis bullosa (RDEB), a disorder which causes his skin to break out in blisters or tear with the slightest friction.

I’m heartbroken, and I’m angry. No child should have to endure what she did. EB stole her from us. Let’s fight for a cure so ...

Epidermolysis Bullosa is a rare genetic disorder that usually impacts infants or young children, causing fragile skin that blisters easily, according to the Mayo Clinic. Blisters can occur in ...

Twenty month old Albi was born with a severe form of recessive dystrophic epidermolysis bullosa (RDEB), a disorder which causes his skin to break out in blisters or tear with the slightest friction.

Influencer Hannah Campbell shared her daughter Elliana Rose passed away at 10 months old after battling a rare skin condition ...

Influencer Hannah Campbell shared the sad news on TikTok that her 10-month-old daughter, Elliana Rose, who had junctional epidermolysis bullosa, died on Monday, April 7.

Influencer Hannah Campbell shared unfortunate news about her daughter, Elliana Rose. On April 7, Campbell’s daughter died at ...