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中国江苏网
27 天
他们“不止罕见”,更需要“被看见”
舒舒是腓骨肌萎缩症(CMT)患者。“这是一种周围神经病,给我带来的最大影响是跑不动、站不稳。”舒舒告诉记者,“我在网上说自己是残疾人,很多人不相信,说好好的女孩子怎么在网上骗人呢!于是,我把自己的治病经历做了短视频置顶。” “1994年 ...
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