Threat to son's treatment for rare disease 'agony'
A mother has spoken about her "painful" experience over the potential end to her son's life-enhancing treatment for a rare ...
Woman diagnosed with rare disease after 'excited' dog accident
An ex-RAF nurse has said that the detection of her rare disease was all thanks to an accidental collision with her family's ...
American Council on Science and Health11 小时
“Rare” but Not Uncommon: The Hidden Crisis of Rare Diseases
Rare diseases - a medical condition so obscure that even your doctor has to Google. Despite their name, these diseases ...
What Is Hantavirus, the Rare Disease That Killed Betsy Arakawa?
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
What is PolG? The rare genetic disease that ended a young prince's life
Prince Frederik of Luxembourg died from a genetic disease called PolG, but experts hope his passing could bring more ...
Prince Frederik of Luxembourg dies from rare disease
Prince Frederik of Luxembourg, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, has died after a ...
A Young Prince of Luxembourg Dies of a Rare Genetic Disease
Prince Frederik, 22, was a founder and the creative director of a foundation that raised awareness of POLG disorder.
My son’s rare disease diagnosis spurred me to ditch Big Pharma for a biotech startup
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
Prince Frederik of Luxembourg dies at 22 from rare mitochondrial disease
The prince had PolG disease, a genetic mitochondrial disorder that prevents the body's cells from producing adequate energy.
Primary school pupils brighten up Rare Disease Day with bold outfits
Pupils at Bridport Primary School put the spotlight on rare diseases by dressing in a riot of colour and learning about the challenges faced by those affected. As part of Rare Disease Day, children at ...
The Truth About Alzheimer’s Disease and Genes
Here, experts explain genetics in Alzheimer’s and dementia, including if it’s hereditary, how to lower your risk, and ...
What Is Hantavirus? All About the Rare Disease Spread by Rats That Led to Betsy Hackman's Death
Gene Hackman’s wife Betsy died from hantavirus pulmonary syndrome, a flu-like virus linked to rodent droppings. Here’s what ...